Talk to Cancer Specialist / Oncologist on Metachromatic Leukodystrophy (MLD)

Hi My name is M Naser and my 3.5 years sun diagnosed with Metachromatic leukodystrophy (MLD). I am struggling from past 2 year to get treated but as per my research there is no significant treatment in Pakistan yet.

There are some treatment suggested like Bone Marrow Transplantation (BMT) and gene therapy which are not available in pakistan.

Can anyone please let me know the treatment plan or where to go fro such treatment as it's very unexpressed feeling when there is no cure till date in PK.

I heared there are some organization in other countries which support these therapies and we have some Doctor's who help patients to align with them for treatment.